tag:blogger.com,1999:blog-7086766599140502629.post8678150467306090104..comments2023-10-29T06:21:20.375-04:00Comments on Natalie Evelyn: Still waitingJenniferhttp://www.blogger.com/profile/04269773044878038857noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-7086766599140502629.post-6029758435597679342010-09-24T16:30:15.209-04:002010-09-24T16:30:15.209-04:00Have either of you talked about a daily maintenanc...Have either of you talked about a daily maintenance dose of diuretic? Tara has gotten a less powerful diurectic for months now to keep the fluid off her lungs. She is on spironlactone. They decided on this specific one because the child doesn't get such a bad electrolyte imbalance. Tara is not on any supplemental vitamins. She did occasionally require a dose of Lasix while she was still in the hospital recovering from her surgery but now her daily dose does the trick. Best of luck to both of you and feel free to ask any questions. I have been in your shoes and can offer the little bit of advice I have experienced. Look me up over on Inspire!<br /><br />Cassie<br />tara_mommy09 (Inspire)Cndhttps://www.blogger.com/profile/13377291219985079740noreply@blogger.comtag:blogger.com,1999:blog-7086766599140502629.post-74379915870203474052010-09-24T07:58:57.523-04:002010-09-24T07:58:57.523-04:00I am in the same boat as you are. Fighting for Las...I am in the same boat as you are. Fighting for Lasix. Them talking about steriods. For some reason nothings working for Kason's lungs. If you'd like some comfort---he's at 90% oxygen! They say part of that is because he was off the wall so long (on a take home oxygen tank that is 100%) so he got dependant. :(<br /><br />This whole thing is super frustrating. They are going to completely wake him up again today so we're wishing for luck.<br /><br />I hope Natalie does much better today!Anonymousnoreply@blogger.com