Today was about the same as yesterday. All the vent settings we so slowly chipped away at have come right back. She is back on pressure control and a rate of 55 (it was 60 earlier today but the doctor lowered it again).
There are some issues with her electrolytes since she had extra Lasix and that is causing problems with her blood gases. It is all more complicated than I can explain when I am this tired. Hopefully they can get it under control so she can have her Lasix back. Her lungs were not quite as wet today on the X-ray but that won't last long without a diuretic.
The doctor keeps saying he has steroids in his pocket and if things are not turning around by tomorrow he will use them. I wish he would already.
We also decided officially to delay the GI surgery. She just is not in a place where that is an option. She has not grown in over a month so after she recovers from the trach the priorities are weaning her sedation and getting some good nutrition in her.
We appreciate any good thoughts and prayers you can send. This has been very stressful for us both and we are doing our best to get through. Fortunately my niece came to visit this week so we have been able to come and go to the hospital much easier than usual. Yesterday Ty was also the first cousin to meet Natalie. Natters slept through it, of course, but was charming nonetheless.
The good news is that Natalie is comfortable and looks very healthy. She has great color and seems to love life without the ET tube. It's just the lungs. When her fiO2 drops below 60 again I will cry from relief. This 86% business is too much.