Today was not as great as we had hoped. Natalie has had some ups and downs as usual. They are having trouble sedating her enough so that she does not fight the vent (it works best when she is not trying to breath over it). The difficulty is that if they have to use high doses of morphine she will no longer be able to eat. Good nutrition is vital for healing her lungs and improving the BPD.
There is not much new to report. We are hoping they find the right balance of meds so she can stay on the oscillator. The only other options are attempting the jet vent or going back on the conventional vent. At this point she would require much higher settings on the conventional vent and it would be further damaging to her lungs.
Hi,you answered my journal entry today from team inpire titled bronchial spasm.I have been going through much the same that you describe.I want you to know that you are in my thoughts.Tonight when I go say goodnight to Benjamin (he was on the oscillator 4 weeks)I am going to whisper to him "Heal and Grow" and as I do I will be whispering to Natalie too xoxo
ReplyDeleteJen, You and Natalie are in my prayers. May the Holy Spirit continue to guide the doctors and nurses to find the right treatment for Natalie. May you continue to find comfort in the grace of our Lord.
ReplyDeleteI was hoping to hear better news from today but at least it's not worse! The balance of the sedation is a hard one to get right it seems. Praying for a better day and improvements tomorrow. Is she still having issues with fluids?
ReplyDeletepraying for a better day today. xo
ReplyDeleteI hope shes doing better..Waiting for an update & praying..
ReplyDeleteI am so hoping that your sweet girl is battling the odds and doing much better. So, so many people are thinking of you all and praying for you.
ReplyDeleteJen, thanks for your comments. Sorry I didn't see yours until just now. I'm so very frustrated for the both of us. Seriously, if I had anger management issues, heads would be rolling!
ReplyDeleteHope things get better for both of us as this day comes to a close! Hugs and prayers!