This has been a long week. For the most part Natalie was stable but still requiring high amounts of oxygen. They told us to prepare for a long NICU stay and that she may not be off the vent for many weeks or possibly even months. It is a lot to adjust to and so very frustrating when she had been doing so well a few weeks ago. They still don't know why she is continuing to struggle and that is very difficult for us as parents.
Today she is having a particularly hard day. Please keep her in your thoughts and prayers. We are anxious for her doctors to make some headway in figuring her lungs out.