Today Natalie had another echo on her heart and the unofficial word is that the PDA appears closed, the foramen ovale remains open (not a major concern right now) and she continues to show signs of pulmonary hypertension. They plan to continue with her nitric oxide at 4ppm to help with the hypertension.
We had a very nice visit today. Her blood gas when we arrived was great so they were finally able to lower some of her vent settings. She responded well to the lasix and her oxygen requirement was an astonishing 26%!!! This is down from 66% last night. Room air that we breath is around 21% so we were very pleased.
She did have her first feeding. The milk goes through a tube in her mouth down into her belly. Four hours after she is fed they pull back on a syringe connected to the tube to look for milk that stayed in her stomach (they refer to this as residuals). For her first feed they put in 2cc of milk and when they checked for residuals they pulled back 2.8 cc (the 0.8 extra was stomach fluid). Well, we were warned that feeding was a stop and go process and may take awhile to get going. I was disappointed that the first feeding did not go through but remain excited that at least we are trying. I also remind myself that she is still on morphine and that slows the digestive tract. She is being weaned from the morphine now so hopefully with that out of her system things will move along more quickly.
The nurse lifted the top of the isolette to change Natter's diaper and it was still up as I prepared to leave. She whispered "do you want to give her a kiss?" Yes!!!!!!!! I leaned over and kissed the very top of her sweet little head. Nattie spread her arms out and had such a sweet expression. I will never forget it-her very first kiss. If i haven't mentioned it before, she has the cutest little head with soft dark hair. I do need to post newer pictures of her soon.
I would like to send a special thank you to my mother's coworkers. I really appreciate the love and support they have shown my mother and especially the warm welcome back she received today. It means so much to me that people we were willing to cover for her so she could be with us for Natalie's first days. Thank you from the bottom of my heart!!!
We have received great love, support and prayers from people we have never met. It has been a wonderful source of comfort and we are very grateful.
I will close by saying that when we called tonight to get our bedtime update Natalie was on 23% oxygen. That makes for very happy parents!