Natalie has had some ups and downs this week. Today is starting out as another down day. Her O2 requirements are back up at 100% and they don't know why. She extubated herself yesterday and they did a quick try on C-PAP. It only lasted 3 hours. She really fights having the prongs in her nose and if there is not a good seal the pressure is lost and it won't work.
I am feeling lost and frustrated. I do not understand why her O2 requirements have been climbing so much lately and they don't seem to have good answers for us. Please pray hard for Natalie. We need every bit of help we can get.
Saying prayers for her!!! Can I ask why they use the prongs with a C-PAP? Reagan had a C-PAP that fit completely over her nose, nothing in the nostrils. Maybe if she wasn't so uncomfortable she would tolerate it better.
ReplyDeleteThinking of all of you and sending prayers up!!!
thinking of you. always.
ReplyDeletePraying like crazy that they can figure it out or she just needs less and less with time.
ReplyDeleteI know how frustrating this is. Clark did not tolerate cpap at all. On a whim one day, his dr tried hi flow nasal cannula. It did the trick. He still had desats and hr drops for several weeks but we were told that was normal. I'm praying for you guys. I know you'll get over this hump.
ReplyDeleteStill praying for Natalie's lungs to get with the program. Im with Lisa in asking why a CPAP with prongs? I have never seen one and I can see how it would be uncomfortable with such tiny nostrils. Maybe it's a new thing. I pray she starts to rebound soon! It is very frustrating when things don't go as they should and there is no explanation.
ReplyDeleteMy daughter had a CPAP that looked almost like a gas mask (scary looking but much more comfortable for them than a ventilator). No prongs on it. I would ask about that. She only got prongs when she went to Oxygen with a nasal canula.
ReplyDeleteLee (fellow ppromer)
Hugs to you! I hope they resolve her O2 levels soon. We're thinking of you guys today.
ReplyDeleteBethany and Christopher
JT, you hang in there!! ** HUGS ***
ReplyDeleteWei
I am praying for Natalie and for her doctors. I am going to ask all my prayer friends to pray for her tonight also.
ReplyDeleteOh, Jenn!
ReplyDeleteI do feel like I'm sitting right next to you - you're on the respiratory side and I'm on the GI side. You always have my thoughts and prayers! Hope we can catch up by phone one of these days!
Hugs and prayers to you both!
Prayers to little Natalie and her family.
ReplyDelete~ Keri