I just got off the phone with Natalie's nurse. After that happened all yesterday it took everything I had to make the call. I was so afraid of what I would hear.
Today so far is looking much better than yesterday. Her oxygen requirements have been in the 30-50's compared to yesterday's 80's to 100%.
They were not able to pinpoint a cause for her increased difficulties. The poor baby had 4 chest X-rays yesterday among other tests. They did feel her right lung had collapsed a little but that it was not enough to be the entire problem. Her lungs actually looked less wet than they had been so that was not the entire problem either. The neonatologist felt it might be a rebound reaction from coming off the steroids. We did agree to do a longer course of steroids with a very slow weaning period of 21 days.
They changed her ET tube (breathing tube) to a larger size this morning. It is possible that she had outgrown the tube and had an air leak.
So, her vent settings are the highest they have been in a long time, but at least her oxygen requirements have come down from yesterday.
They had discontinued her feeds yesterday to give her a break and moved all her meds from oral doses back to IV meds. They are now in the process of moving everything back to oral (well, by oral they mean the tube that runs from her nose into her intestine). So, that is great progress.
The other big news today is she finally had her eye exam and her eyes look mature with no issues. SO nice to have one less thing to worry about.
Thank you all for your support yesterday. Days like that really test my limits and it is comforting to know there are people thinking of her and praying hard. I will update later if there is anymore news.
GO steroids!!! I hope they do all they can do and we see some decreased vent settings soon (although right now I will be patient and not too greedy. Today is already more than I thought we would get).